BEL AIR, Md. (WJZ) — It was a special moment for a Harford County teen this week, 19 years in the making.

Macey Breitenback was released from the Holtz Children’s Hospital in Miami and is finally going home to Bel Air.

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WJZ first introduced you to the teen four years ago, and then again last month as she underwent life-saving surgery.

Breitenback was born with a rare disease called visceral myopathy, a smooth muscle disorder that affects all of her organs.

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She was given only one week to live. Now, 19 years later, this is a moment her family never thought would come.

She says she can’t wait to travel.

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Breitenback would spend 18 hours a day hooked up to IVs and has been in and out of the OR 100 times in her life.

CBS Baltimore Staff